Wednesday, September 16, 2015

Update - September - Matai is 4

It's been a while! 

I still think that this blog is a good place to share things for Matai's development, however I appear to have been off my game over the past 6 months. 
So it must be time to remedy that!

Matai turned 4

Last week was Matai's 4th birthday.  Thank you to all of you who made it special for him, this year he had a better understanding of gifts and enjoyed opening these, even making the appropriate noises sometimes ...'wow'.
Birthday cake is by far his favourite part about turning 4, and indeed a big favourite part of life in general.  He enjoys enacting out blowing out candles and if there's ever cake on offer.... well I apologise in advance for his mad mouth-stuffing skills, just know that he is getting immense pleasure out of it! ;)

At 4, it feels like time to take stock of where we are at:

Speech

Matai seems to have had a little burst of confidence in the last couple of months.  He is much more likely to imitate words now and have a go.  He has a lot of vocabulary (in his head) but more and more (if you listen really hard) he is attempting words in everyday life.  Until now he has always kept his talking for home and 'safe' situations, however I think that preschool should be able to hear more words more regularly these days - the challenge will be to make out what each word is. 
Two word utterances are fairly regular now and three words pop up every now and again. 

Matai loves to converse. He 'chats' all the time and he is really telling stories.  A regular time for doing this is when Aaron comes home from work, or when he is talking on the telephone.  If you listen hard, you can make out names or words that have happened during the day, and it is very clear that this conversation has meaning for Matai.  He will pause and wait for you to respond, and get very frustrated if you don't (he really doesn't mind what exactly you say, he will roll with it).  I doubt these conversations are making it to preschool but I am hopeful that he will be brave enough to engage a few more of his special people over time.



Social Skills

This has been a very big area of interest/concern for Aaron and I over the last 6 months.  We know that Matai doesn't know how to initiate interactions with other kids and engage properly, but we are seeing him want to do this more and more.  I have been very worried about how other kids might perceive him and whether or not they are able to have positive interactions with him, so that they might be encouraged to join in with him in the future.  I believe that Matai has as much to offer them in terms of learning about the world, as they do for him, however I appreciate that they all need adult help and role-modelling in how to have meaningful and positive interactions.  I have been doing a lot of reading and learning about inclusion and how beneficial it can be to all parties involved.  At preschool, the children are not yet prone to the same judgements or bias as they may be down the track and so I see it as a critical time for learning about how everybody is different and that differences are to be celebrated.
I would love Matai to be able to help teach others, yet my concern is that without the verbal communication skills, he will stick to his own happy self, and learning opportunities for both Matai and others may be missed.  I think Matai is at risk of 'muddling through' reasonably successfully... this is of course is not a bad thing, but being a hopeful mum, I wish for the very best situation for all.

In the meantime I am regularly sending laminated photos to preschool with Matai, to help create a starting point for interactions.  I have been writing a sentence or two on the back of each photo to give an adult some background and I try to underline words that Matai can say and that you might hear.  I hope that these might help Matai to have a meaningful communication with adults and that another child might be drawn in as part of the conversation if interested.


Gross Motor

Matai can ride a scooter now. Pretty cool.



Small Motor

We have a long way to go here.  I have noticed that he has been able to turn some of his toys on and off now, using a switch, which is good progress.  Pre-writing skills remain a challenge and need on-going patience and attention.  Matai still needs to use a proper pencil grip.  I am hopeful that time on the 4 year old mat seeing others writing, will encourage him to want to have a better go at these things.


Comprehension

Counting
- Matai has rote learned how to count to 10.  He often starts at 2 rather than one.  He knows that it is what you do, with each object one at a time when you have many things or pictures in front of you.  However, I don't think that he understands the concept of counting yet.

Colours
- Yeah, nah, nothing doing yet!

Books
- It is harder to get Matai to sit down and read to him now, because he really just wants to sit with books on his own, and he can do this for up to half an hour at a time.  When we read to him, we have to factor in time for him to have a go at reading it to himself after we finish.  So books still remain a biggie, and recently Matai showed off pretty awesome memory skills by remembering all the key information from 'Today is Monday' by Eric Carle.  He could remember what objects occurred on which day without needing the pictures in front of him.  I think this shows that rhyme and rhythm are very powerful for Matai's learning.  We were particularly impressed because this book was a library book and we had only been reading it for a week.

Singing
- whenever he can.  Matai is starting to sing along to songs in the car, it is becoming a good way for him to practise his speech.



New Interests and Activities

Matai's interest in the Wiggles has increased, encouraged by a trip to Dunedin for the concert which he was enthralled in!  We love them too, however we are needing to manage DVD time, as it has become a preferred 'go to' for Matai.

Matai has been doing a preschool music class (Kennedy School of Music) on a Friday after school.  It is preschool rhymes/songs with a bit of rhythm, listening and instrument use.  He loves it.  As much as anything, I am enjoying the social interactions that he is getting out of it as much as the music.  Mia goes along too which is nice for them both.

Matai Loves Polyfest Practice

 
Matai has really enjoyed the polyfest practising that has been happening at preschool.  He seems to like two of the songs especially and knows that the end part is akin to the haka.  It is great seeing him feel a part of something and just generally enjoying the singing and dancing.  I hope we will see more of him on stage down the track...
 

Saturday, April 11, 2015

April Update

A successful IDP with Jenny again last month, many thanks to all involved. :)

Some new things to share:

  • Matai has started to bang his head on the floor when he is upset or frustrated.  He is hitting it really hard and then becoming even more upset when he realises he has hurt himself.  This is new behaviour and I'm hopeful it has a brief phase but I would love to hear if he is doing it at preschool or if it is just with his parents.  We are trying to use the word 'gentle, be gentle' to draw attention to stopping it.  Would love any advice anyone might have?

  • We have had an initial meeting with Jenny re choosing a school for Matai (and with Mia in mind).  We are now slowly in the process of visiting schools to gather information and find the 'best fit' for all of us. 

  • Categorising - we have noticed a little more grouping and lining up of objects shapes, game pieces.  He now likes to unload the cutlery from the dishwasher into the right places in the drawer and he makes not a bad effort.  He knows which of his clothes go in which drawers and can make an admirable attempt at putting them back after emptying them... (whilst he is supposed to be sleeping!).

  • Playacting - Matai has recently pretended to cry, for fun.  And it is funny too. may be something to look out for though. :)

Speech
  • We have been having a few more 3 word phrases from Matai, and have even felt like we have been having a conversation a couple of times!  I am more and more aware of how much Matai is understanding now.  He listens in on our adult conversations and sometimes acts accordingly (eg, gets whatever object we were talking about or gets his coat if we have been discussing what we are going to do next). 

  • Over recent weeks, I have heard Matai initiate more single words than ever before.  The key here is initiating because they are all words that we know that he knows but he usually only uses them after we say them first. Examples have been walking out into the rain and him saying 'rain' and 'wet', pulling on my necklace and saying 'pull' and 'push'.

  • And we had a very clear question word recently too.  'Daddy, where? (weeya?), directly after Aaron had walked out of the room.  :)

  • One of the IDP goals was to sign 'play' with the other kids at preschool and we have seen him do this at home now. It wasn't obvious, but it was repeated when we made a point of asking about it.  It might take a bit longer to build confidence to use it at preschool, but it is awesome to see it eventuating, and especially because it is a direct result of someone else's teaching!  Yay. :)

Anyway that's us.  Nothing really big, but it has been a while since I've been on here.  Thanks for reading.

World Down Syndrome Day 2015

To mark World Down syndrome day a month ago on 21/3  (to signify 3 copies of the 21st chromosome) I made a short video of our little guy.  Thought you might like to see it. :)



Wednesday, February 4, 2015

January Update

Happy New Year!

Well it's February, I guess we already 1/12th into it!  I hope that everybody has started well and is feeling mainly fresh after a holiday with awesome weather.

We have been easing ourself back into routine and with school going back this week, I think we are there.  We had our first family camping trip to Glendhu Bay last weekend and it went much better than I had anticipated. In fact I am now open to becoming a 'camping family'!  Wow. 

Matai enjoyed the time away.  He initiated a new word 'cold',  which he used a lot when swimming in the lake, and which he later transferred to eating yoghurt (favourite food) here at home.  It has been nice to hear him use a word that we haven't been working on or looking for and more of these are creeping in. 

So new words and topics/concepts that have come out of our 6 week break are:

cold/hot, wet, swimming, beach, tent, towel, togs, sunblock
present (the opening kind)
raining, windy,

I have included some photos below that you are very welcome to print and use with Matai if you wish.  He just love love loves photos with things and people he knows!!

 
(breakfast)


 

 



 

 
(a very conveniently placed hand!  Matai now likes to get his teddy and say '1, 2, 3' and throw him into the air)

 
 
 
 
 

Friday, December 19, 2014

MOE website - specific section for Down syndrome

Just became aware of this - awesome!

The new Ministry of Education website includes a section specifically about students with Down syndrome: http://inclusive.tki.org.nz/guides/down-syndrome-and-learning/

Loads of good info, links and resources about what Down syndrome is and specific challenges that may be encountered in the learning environment.

I will go and have a good old browse one day, way too much info to deal with in one sitting, but a very good resource to have.
Well done MOE!